Cystic Fibrosis: A Guide for Patient and Family
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Written by Dr. David Orenstein, director of one of the nation’s leading CF centers, this one-of-a-kind guide offers clear explanations and real-world advice on cystic fibrosis and its management. Patients, families, and health care professionals will find practical and reassuring information on day-to-day concerns—school, travel, exercise, nutrition, medication—as well as on physiological effects, treatments, complications, long-term issues, and prospects for a cure. The Third Edition is updated and revised throughout. Wayne M. Samuelson This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals. The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions. Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction. The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called ""The Basics."" These are the high points of each chapter, and represent the essential information in each section. This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.
Contributing AuthorsIntroductionPrefaceAcknowledgments1The Basic Defect12Making the Diagnosis133The Respiratory System194The Gastrointestinal Tract775Other Systems976Nutrition1077Hospitalization and Other Special Treatments1318Transplantation1499Daily Life18910Exercise19711Genetics21312The Family22713The Teenage Years23514Cystic Fibrosis and Adulthood25315Death and Cystic Fibrosis27316Research and Future Treatments28117The Cystic Fibrosis Foundation293App. A: Glossary of Terms303App. B: Medications309Glossary of Drugs334App. CAirway Clearance Techniques347App. DSome High Calorie Recipes363App. EThe History of Cystic Fibrosis373App. F: Bibliography375App. GCystic Fibrosis Care Centers in the United States377App. HCystic Fibrosis Care Centers Worldwide419Subject Index449
