Keeper: One House, Three Generations, and a Journey into Alzheimer's
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Five years ago, Andrea Gillies— writer, wife, and mother of three—seeing that her husband's parents were struggling to cope, invited them to move in. She and her newly extended family relocated to a big Victorian house on a remote, windswept peninsula in the far north of Scotland, leaving behind their friends and all that was familiar; hoping to find a new life, and new inspiration for work. Her mother-in-law Nancy was in the middle stages of Alzheimer's Disease, and Keeper charts her journey into dementia, its impact on her personality and her family, and the author's researches into what dementia is. As the grip of her disease tightens, Nancy's grasp on everything we think of as ordinary unravels before our eyes. Diary entries and accounts of conversations with Nancy track the slow unravelling. The journey is marked by frustration, isolation, exhaustion, and unexpected black comedy. For the author, who knew little about dementia at the outset, the learning curve was steeper than she could have imagined. The most pernicious quality of Alzheimer’s, Gillies suggests, is that the loss of memory is, in effect, the loss of one’s self, and Alzheimer’s, because it robs us of our intrinsic self-knowledge, our ability to connect with others, and our capacity for self-expression, is perhaps the most terrible and most dehumanizing illness. Moreover, as Gillies reminds us, the effects of Alzheimer’s are far-reaching, impacting the lives of caregivers and their loved ones in every way imaginable.Keeper is a fiercely honest “glimpse into the dementia abyss”—an endlessly engrossing meditation on memory and the mind, on family, and on a society that is largely indifferent to the far-reaching ravages of this baffling disease. Publishers Weekly In her forthright, smartly researched, and warmly recounted chronicle of her troubled two years taking care of her mother-in-law in the throes of dementia, British journalist Gillies reveals the "dehumanizing" toll of the disease on the whole family. Gillies, her husband, and three children moved to a rambling Victorian house in the wilds of a Scottish peninsula and took in Chris's parents, Edinburgh residents who had been showing signs of needing increasing care: irascible Morris had "bad legs," while his strong-willed wife, Nancy, at 79, was spiraling deeper into Alzheimer's. As Nancy's memory deteriorated the entire family unit began to collapse under the strain of constant caretaking. Gillies writes with a novelist's eye for detail, and her unflinching rendering of Nancy's excruciating loss of self is skillfully and tenderly drawn. As well, Gillies has delved vigorously into the research, offering the received wisdom on Alzheimer's, which dictates that acceptance and distraction are the most helpful methods to deal with sufferers ("Make Alzheimer's fun, they exhort"). Moreover, her memoir is an invaluable resource on the stages of Alzheimer's, history, drugs, brain function, care-giving options, even literary works. (Aug.)
