Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome
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An exceptional memoir that provides emotional insight and practical advice. It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast... When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome. Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted. Publishers Weekly Montana wife and mother Groneberg traces in her tenderly moving account the life-changing realization after the premature birth of her twin boys that one of them, Avery, has Down syndrome. Utterly unprepared for the emergency C-section of the seven-week-early preemies, Groneberg and her writer husband, Tom, the parents of a four-year-old, are devastated by the news about Avery, and they must gradually alter their easygoing future plans about raising their kids. They reject the notion of adoption, suggested by a well-intentioned nurse at the hospital where the babies are ensconced in the neonatal intensive-care unit, and embark on an exhaustively trying, ultimately enlightening journey to care for the needy babies, especially Avery, and educate themselves about his condition. Rising from the shame of feeling that their family is "broken," and letting slide hurtful comments by a grocery-store clerk or neighbor, Groneberg devoured books and information from the Internet, and began to foster their son's development by seeking out physical therapists and specialists. Small gains in Avery's motor skills were causes for celebration, and the beginning of speech the greatest gift the parents could ask for. Groneberg affectingly delineates these gradual, hard-won stages during Avery's first year toward love and acceptance. (Apr.)Copyright 2007Reed Business Information
At First, It Hurts to Breathe 1Slipping 15Please, Come Back to Me 35Home Is Not Where You Thought It Was 53Caffeine 71Cathy Can't Handle Us 90They All Do That 108I Think I Remember 129Some Days Are Better Than Others 145Alphabet Soup 162Taxi Rides 179More, More 195Everybody's Baby but My Own 214Parting Gifts 229Chapter Notes 243Glossary of Terms 253Resources 263"Welcome to Holland" Emily Perl Kingsley 291
